When Kendra Riley‘s daughters were diagnosed with fatal metachromatic leukodystrophy, her family was forced to raise $500,000 and relocate to Italy – because the lifesaving treatment was not FDA approved. Today, Riley is fighting for Right to Try 2.0: congressional legislation designed to let people with ultra-rare diseases access cutting-edge individualized therapies without bureaucratic delays from the FDA.
The Goldwater Institute says the bill would create a federal pathway for patients with rare and ultra-rare diseases to access gene-based therapies designed for one person alone, which cannot move through the FDA’s clinical trial process in time to save a life. The original Right to Try was signed into federal law in 2018.
Dr. Simone Gold joins Dr. Drew to examine Riley’s story, connecting it to a broader pattern of federal overreach in medical freedom – especially its hindrance of early outpatient therapeutics during COVID-19. Food entrepreneur and small-business advocate Chef Andrew Gruel discusses his upcoming book and his reelection campaign for Huntington Beach City Council.
Kendra Riley is an advocate for medical freedom and for Right to Try 2.0. Read more about her daughter’s story at https://rileysroad.com
Dr. Simone Gold is a board-certified emergency physician and a Stanford University-educated attorney. She founded America’s Frontline Doctors and GoldCare, and is the author of “Selective Persecution: The Legalization of American Fascism.” Follow at https://x.com/DrSimoneGold
Chef Andrew Gruel is a food entrepreneur and small-business advocate, and the CEO and founder of American Gravy Restaurant Group. He owns Calico Fish House, hosts “Cooking with Gruel” on Rumble, and is a Huntington Beach city councilor currently running for reelection. Follow at https://x.com/ChefGruel
